- Love is this, what we live for
- At first the was loneliness
- Meeting with a Friend
- A Friendship is a Gift of Life
- Meaning of life in friendship
- To leave the trace of Love
- Friendly Sopot
- Medugorje with Friends
- With the Army to Lourdes
- Footsteps of St. Francis of Assisi
- Pilgrimage to Czestochowa
- Retreat - His Powers
- My rehabilitation
- A friend will give you wings
- Volunteering
Proszę napisz do mnie,
jeśli szukasz wolontariatu.
Cenna jest dla mnie każda pomoc, dzięki której będę mógł żyć aktywnie.
Nawet, gdy nie wiesz jak pomagać osobom niepełnosprawnym, możesz dowiedzieć się o tym w praktyce, będąc moim wolontariuszem np. podczas jakiegoś wyjazdu, czy też na turnusie rehabilitacyjnym.
Mam duże doświadczenie w szkoleniu wolontariuszy, którzy jeszcze nie mieli kontaktu z osobą niepełnosprawną.
Pamiętaj, że Dar Twojej Pomocy może być Darem Życia...
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My rehabilitation to force squeeze like a lemon1 |

In Jack's case the spiritual development allows him to focus on the most important life activity for him values such as faith, friendship and love, it saves a life energy on the struggle with the complications of the disease, which over the years become inevitable. Approach to life, which in itself is still evolving, allows him to accept the acceptance of physical limitations, as it flows from the consciousness of self. Presented by the way refers to the fulfillment derived from the ancient wisdom of Cornelius Gallus, Jagiellonian University motto based on the principle plus ratio quam vis2. In his own life, muscle strength Jacek is not capable of doing almost nothing. The strength of their convictions, mature attitude, a broad perspective of the mind creates your world, sharing it with those whom he meets in his life. 3
- My friend said to me, writing about his master's thesis.
And something in it, because from the viewpoint of medicine, little can help in this disease, like mine: congenital, progressive, debilitating...
Indeed, classical rehabilitation to some extent, may slow the progression of the disease, but living in the countryside, I never had the benefit of physiotherapy.
But I wonder if a lot of rehabilitation to help. After all, as is clear from the book Fri "Spinal muscular atrophy, survival of patients with SMA II is extended with the potential to treat and prevent complications at an average of ten years. 4
In my dozen years at the thought gives rise to the only lyrics: What am I doing here...?:)
On this question I can answer in one word: simply I'm alive!
A malcontent would say: but what a life...?
I will answer him briefly, intense, interesting, and at times even beautiful:)
Nobody's perfect - no flaws, deficiencies, weaknesses ... whether in the sphere of physical, mental, emotional, or spiritual ... The real problem arises, however, when a person stops at their shortcomings. In this way, even the "protruding ears" can become a "lame", which paralyze the whole man.
I just "stopping" is the most appropriate statement as it is focusing attention on something, while lack of exercise - activity.
Immobility and stagnation and decline, and death cause not only my muscle...
Those who do not require them to exercise your mind, it becomes narrow-minded - dull-witted.
Anyone who does not try to find time for prayer and not made an effort to fight the temptation, do not take the source of life - with God - and loses the power of the spirit.
Anyone who does not even try to overcome the weakness of the body and avoid fatigue, you never will find out how much he can... and even vaulting in what can not.
Unfortunately, even in my life was the time when I realized how easy it is to give up thinking that I am a disabled, so you have to give up certain things, and so can not go.
Emphasized here the word surrender, because it has cancellation - primarily from the effort - and no fighting. And yet the way of thinking translates into a lifetime.
It was not until several years still am convinced that you have to fight ... for every beautiful moment of every good day, a whole life, because everyone has them only one and it depends on us, what we do with it.
It was in this battle, mainly with myself, I find a beautiful journey through life, which is like climbing up a mountain ... Only those who will wander, have a chance to get to the ... In my case it is just to take a challenge in many cases allowed me to overcome these limitations, which previously seemed not to pass.
In all this I have no doubt that without the grace of God I would not do anything, nor pojawiliby the people who help me. However, I am convinced that God helps, but not sparing ... I do so much as I can and leave the rest of the Almighty...
Therefore, when difficulties arise, which seem not to jump, I try not to give up. Because I know that the harder the more worth it ... Often such a difficult situation even lead to some positive change. Sometimes due to the fact that something is complicated, I had a chance to mobilize themselves to new challenges.
Thus, for example was when a colleague, who was assisting me during a retreat at Mount St. Anne, was late for a train and reunites with, and I did not have with whom to stay. It seemed that I had to go home with a friend who brought me. I asked him, however, that brought me to a girl he saw in the lobby Retreat House. I did not know her, but what harm to ask me if she could help me? And it was worth it, because it has agreed to:) This was the beginning of an extraordinary friendship, which we've been through a lot, including a pilgrimage to Assisi and Rome.
I think that such a good, deep and beautiful relationships are my most valuable rehabilitation. I feel that the more worth fighting for life, the more it can enrich the other person ... Such give and take each other is like breathing ... You can not just be on the inhale or exhale, but the more we give ourselves, and we assume that we live better and better:)
Are close to me the words of John Paul II: Man is not only the perpetrator of his actions, but for these acts is also in some way, the creator himself.
In the context of these words, my disability takes on a new point of reference. For me, as a show of hands may be a similar effort, as for an athlete to increase stukilogramowego weight. But after all, not so much what is important is how much is raised, but what is clear from this activity or effort ...
Unfortunately, often among people with disabilities and all other activity is limited to hand thumb, which switch the TV... And life flows... not with us, but next to us...
In retrospect I see how many gained by significantly reducing television viewing. Because you can not sit or lie down in front of TV while hiking ... And we know that the movement is good for health! And although I can not even move the truck, it's the same sense of movement, while driving the truck, triggers a period of stagnation and provides many incentives, including visual cues that stimulate the whole body.

These incentives are much more, when it embarks on some mountain trails, or walking pilgrimage to Czestochowa. Usually there are no smooth roads, and indeed must overcome stones, branches, sands, and above all their weaknesses.
For those who are pushing my cart, it is often a feat that can be described in one sentence: "It was impossible, but feasible!" And for me, each Wertep an effort to maintain a pawn in a wheelchair, who jumps, jerks, and years for all the possible side... and I in him;-) But can you imagine a more sophisticated massage? Probably none of the physiotherapist would not be able to massage me so universally:)
Similarly, driving a car requires me to continuously tensing your muscles, especially during cornering - so that my head is left somewhere around the car:)
The fact is that I have little muscle, and their performance is miserable... But if you do not zmuszałbym to the effort of what I have left, it is probably nothing I would not remain... Generally speaking, I can say that for me every form of activity is rehabilitation.
However, I know that not everyone can leave the house, if only because there is nobody - just like me several years ago...
But if it is a reason to stay in one place?
It remains our inner world in which everything we can. But only depends on us, as it should fill... and devote his time and effort to reach up in the imagination to reality.
I remember the time when you're not left home, I saw a photo of a boy in a wheelchair and a beautiful mountain trail, a scenic stream flowing next to the... I watched him a bit jealous... and imagine how beautiful it would be there... Although from the perspective of Jack, who hardly left the house, it seemed completely unreal dream, because I did not know anyone yet... and there were no indications that it will know.
This picture, however, showed me that you can ... that if he could, then I even go in some way, I also had a chance.
I went, having no idea what awaited me behind the nearest corner. And after several years ... Koscieliska Valley, Chocholowska, Morskie Oko, Giewont ... - It is hard to count how many of these fascinating places.

At 1987m above sea-level Kasprowy Peak at Camp chaplaincies at the White Dunajec:) You people, nice atmosphere, an exciting experience ... This was a particularly beautiful and exhilarating time to discover the new face of friendship ... and new inspiration ...
Has led me to such free association "tapeworms" - tapeworm: a parasite that is sucking the life-sustaining food for human ...
In my understanding of disability that requires rehabilitation, is not so much the same physical disabilities, but rather a way of thinking and living. The best example is the statement: "I need something to kill time ..." For me, time is one of the most valuable assets, because any time lost will never regain. And though in this life has nothing to do forever, that's also the best time of fall for us from heaven. Only depends on us whether we take the effort to raise his hand and reach for the drops of happiness, if we just wait passively, and they vainly spadną next to us ...
Perhaps I became involved in too many cases and hard to cope. But when the night, "freaked out" I go to bed, I feel that it was not a day wasted. I have to admit that maybe that's what my life comes to this realm like a lemon squeeze.

Reportaż Weroniki Worobiej nadany w Radiu Pik - Bydgoszcz
{mp3}pik_rehabilitacja{/mp3}
1. Grand Prix w konkursie literackim Fundacji ARKA pt. Rehabilitacja to też...
Opublikowana w książce z cyklu: Odkrywamy świat osób niepełnosprawnych
2. plus ratio quam vis łac., rozum wyższy niż siła; niech przewodzi nie siła, lecz słuszność, dewiza Uniwersytetu Jagiellońskiego.
3. Aleksandra Jędrysik, Sytuacja życiowa i osiągnięcia mężczyzny z rdzeniowym zanikiem mięśni.
Praca magisterska, Uniwersytet Jagielloński, Collegium Medicum, Wydział Nauk o Zdrowiu, Kierunek: Pielęgniarstwo, Kraków 2008, s. 81-82.
4. B. Ryniewicz, Zanik rdzeniowy mięśni, w: Klinika Pediatryczna 2003, Vol. 11, No2, s. 217.


