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A friend will give you wings:) 1 |
If everybody was the same, no one no one would be needed
ks. Twardowski.
There are many ways of life,
That we can choose
but God gives us
the best of them
and its direction
is set by
our meetings...
Jacek Ryng
Sometimes, however, that in the name of tolerance undue trying to pretend that we have no different that sometimes did not appear any discrimination. That is why we should not be said, "cripple" (I think that this word expresses more than a way of life, physical state), "disabled" and does not even fit everyone: "disabled". Became fashionable today, the words "fit differently", or "just the same"... But if by "neat" does not attempt to determine the escape from the problem, which is a kind of wall between us as a band singer Michael Sweet. It is encouraging that in this "wall" is a window, such as competitions and book Ark Foundation:) Published by the Foundation of the book: Rehabilitation, it also... contains my text, which as a young woman replied:
This example shows a remarkable penetration when a disabled person can help a person physically healthy so that she might help others...
Barrier for people with disabilities may be physical even leave the house... But no more wall, which can seal off all of us, in any world are their own thoughts, ideas, complexes, injury, or feelings of helplessness and inability?
It would seem that not much I can - to a small extent only move his right hand, which I write with difficulty. Despite this, I try to "swim against the tide " and overcome the obstacles associated with the disease, and thus pursue what was apparently impossible.
From the small village started a great journey, during which go to people and open up for them, and at the same time, break the source of which is lack of knowledge and understanding. Thanks to frequently disappearing boundaries that divided the person unable to fully efficient - often for fear of contact with the patient.
I do this not only during travel, when I refer direct relationships. Overcoming the most difficult-psychological barriers of loneliness, sadness and discouragement - I deal with through its website: www.przyjaciel.opole.pl
For several years, every day, visit this site, several hundred people left comments and let me believe that my testimony might be needed for life to other people. Write to me, mainly non-disabled people, which apparently nothing to be happy is not missing, but somewhere lost in your world...
My friend, whom I met at camp chaplaincies, shared with me his reflections, he wrote:
I had big concerns from exposure to the disabled person. But it turned out that with personal knowledge of you all barriers disappear somewhere. The kindness you open yourself to other people and tell them that, despite the worst adversity can be a life full of goodness, truth and beauty. Not only does the talking, not only comforting, but you show your life that can not become a reality.
It turns out that even the disability in such a large extent determines the situation of human life must not be a decisive force on how that life looks like - whether it is happy and fulfilled, or is leaking through your fingers.
An interesting experience, related to the penetration of human worlds, was to share my experiences and thoughts during public appearances, such as the Vocational Secondary School or at Mount St. Anne's. They approached me later to people who want to learn more about my world. More than once he was in fear of them disabled, but my words have helped them overcome these barriers. Not always possible with any person no longer talk, but I'm prepared for everything:) I have developed in the sleeve and booklet issued by me: You do not waste a life for themselves and to be the Sun and the Flower. I can always give them a keepsake, a piece of my world.
Although a lot of work, I try not to fall into a mad run this world... To see that people are increasingly in a hurry... have less time for others... For myself... And even for God... For me important is the second man, through whom also God gives himself to us and shows his love... Sometimes just a phone call from a person who has a problem, so I threw all my affairs and tried to help her. The spirit and joy of life I was in this, to selflessly do good for other people.A student of physics - Justin, told the newspaper, shared this reflection:
I do not see what he takes from the people, only what we give. In addition, it moves on four wheels, nothing from us is no different. I've known him for two years, I owe a lot to Jack. For example, recently, lying in bed, he taught me on the exam in electronics. I passed the four! It was amazing. Jace looks at the world differently. Thanks to him I also see details of the second imperceptible 2
There are moments when I need solitude. Especially after a departure, when I am among the people, over time there is in me the desire to mute podumania, talk alone with God... I'm not looking for companies at any price, or superficial knowledge, because they usually pass on the first problem, because there was no deep foundation... It is important for me to be mutually enriching relationship, we each can offer you something, for example, during the joint mission.
Jack, once wrote a greeting. It invited me to the Retreat - I help you. Today, already at home, I realized that it was you helped me and arranged for a wonderful stress solving, sunny, weekend.
Podarowałeś me a smile, a beautiful scenic walk on the trail, shared ice cream, getting to know wonderful people, no boredom - of that spending time at the side of such a man - every woman dreams of - you just thank I could spend with such marvelous time and gain strength to return to everyday life...
I often help people who had no contact with persons with disabilities. Then I teach them easily comprehensive care of me. One of my colleagues said that in this way educate masses of volunteers. With such a fast courses helped me a few hundred people who visit me and with me traveling around the country and the world.
Unfortunately, in today's world more and more relationships are limited to various types of messaging. Thanks to the kind of man is the "hand", but disappears when the heat of meetings, an opportunity to look, feel, gestures... Words, of course, also are important, especially when they "slide" one for us, but goes to some sensitive chords and their vibrations penetrate us deeply...
But it is hard for me to maintain relationships that would be limited only to the mailings. This is mainly due to problems with writing, but I do not want "just click" life. I'd rather live it in reality...
In the virtual world for ourselves as we wrapped gifts. Therefore, prior to the meeting, I try to not have specific ideas, expectations, or sympathy or antipathy. The meeting is similar to a clean sheet - only depends on us, as it will save... But we need a little commitment and courage to make these gifts' to decompress. " This is the actual knowledge, when they say not only words but also the different gestures, and above all the actions and attitudes in specific circumstances.
Especially my situation makes it particularly appreciate these moments, which is given me to live with another person. For example, when we wander in front of him, into the forest, the lake, as there is always need someone who will depart with me... And even more beautiful is to share those experiences with someone who feels I need, and I her. From which we can see around them, as well as myself, good and beauty and that we mutually enrich...
A colleague wrote in his article:
He experienced my health, and gave me an opportunity to provide assistance. Many activities carried out around Jack was disproportionate to the joy of being together with each other and conducted candid conversations. Touched the deep matters, but also no shortage of jokes and light themes.
For me, being with Jack is a kind of therapy. People often have problems with this to just be. I am not the exception. Jacek But he can be great for a second and when I am staying with him, it gives me that his ability. 3
In fact, we live in so far as we exist for others. But only by moments of life lived together, we can also occur in what is deepest in us, and also the most sensitive. It is like discovering a Secret Garden, the key to which is a particular mutual harmony. Often these gardens in us die, and could flourish, so wonderful... Then we meet and also shape themselves.
Human worlds are not only warm Caribbean, but also the cold of Antarctica... It is hard to be surprised that sometimes I feel the distance or coldness in the knowledge... This may be due for example, fear of otherness, or before an "entangled with"...
In a sense, I understand such an attitude, because being with a disabled person often is associated with a need for help, and not everyone is ready for this, or does it have such opportunities. Sometimes the cause may be a simple lack of desire...
Unfortunately, not always manage to find someone if I need such as during a trip. In response to my request, sometimes I hear: "Unfortunately..." In addition, there is a paradox here: "Jack, you have so many friends, so someone will be found..." But when so many people think, then you may not find the one ...
And another paradox: so much praise, sympathy - even in the comments on my page - and sometimes so little presence in the reality...
At such times I feel as though only God have... Actually, until God... Maybe that's why sometimes I have to go through this "wilderness" I come closer to him, I again realized that it really is always only he...
Unfortunately, the solitude in a virtual crowd is not easy, my reality ... In this perspective, the more I appreciate it when someone he will propose that it might arrive. It is not often this happens, but even more so for me it is God's gift. Indeed, he man for not forcing anything, just gently moves us something...
It is important for me to have the distance to the disease, and squeeze all the juices of life. Although the strength of my muscle is so negligible - by force of will still try to go on the road. During this journey I would like to break down barriers that separate people - more or less efficient - because each of us is a separate world.
I think that is well illustrated by the words of the thesis, written by his friend student:
Strength of character, personality and Superb This amazing joy in the eyes-so, for me, surprising in a person with a disability. Jacek showed me that we talk about disability. As he writes: "There was never given to me, walk on their own feet, but if it is a reason to stay in one place?" That's why it's not a reason to stand in the place I wanted to write this work - to show how broad the issue is spinal muscular atrophy and its consequences. Jacek, even though he knows that there is no cure for his illness does not give up. Caring for him I learned a lot from the care of a disabled person 4.
Every moment of life is to go through the bridge, which is something ends and something begins ... And it is worth the time to stay... to appreciate the unique and happy moments...
My life has also been widely described in the thesis. Here's an excerpt:
Jacek despite external constraints arising from the disease for several years trying to build their lives among the people. The path of his life are often very different people. With some makes contact right away and very spontaneous, others need more time to get in a wheelchair, to which they look to see Man. There are also people who never afraid of disability does not come up to Jack. It may not be able to overcome their barriers and inhibitions, so for many years Jacek himself wrestled. 5
I offered friendship, or love makes every man, even a "paralytic", can rise above their problems and limitations. For then sprout wings, so you can more can be better, be more beautiful... Sam, however, as a disabled person, I need to develop in themselves what is good and valuable. I have to spend a lot of work and time to make it grow, and become someone worthy of admiration, not pity... I would say that if I was physically weaker than ten times the average person, I have to spend ten times more time and effort to get his standard of living. Although it is not easy, but life has shown me that it's worth... be wyczynowcem... And it can be anyone who does not shut up in his own world:)
Jacek Ryng
1III place in the competition, "Fit, disabled. Passage of the Worlds, " organized by the Ark Foundation
Published in the book of the series: Discovering the world of disabled people
2 Agata Jop, "Do not waste your life, because it does not watt"
Polska Gazeta Opolska, The Times, 23 maja 2008r, nr21 (32) str.4 Wokół nas
3 Marzena Klima, "Searching for of Life..." "Dziedzictwo" Nr5/2008 (126). str.28-29.
4 Monika Gajda, "Spinal Muscular Atrophy - offers of support and rehabilitation."
Praca licencjacka. Państwowa Medyczna Wyższa Szkoła Zawodowa w Opolu, Instytut Fizjoterapii. s. 10
5 Aleksandra Jędrysik, Life situation and the achievement of a man with spinal muscular atrophy.
Praca magisterska, Uniwersytet Jagielloński, Collegium Medicum, Wydział Nauk o Zdrowiu, Kierunek: Pielęgniarstwo, Kraków 2008, s. 68.
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